It has been a crazy two weeks. On the 14th of April at about 7:50 a.m. our time Sara called and said that Nathan had had a stroke. At the time he was in surgery to remove the blood clot. I asked if she wanted us to come and she said she thought they would be fine. I continued to get dressed for church and then she called back and said that the doctors had said that we needed to get there within 24 hours. I thought she said that he had had a stroke in the main artery of his back just below the skull. I later learned this was wrong and he had had a brain stem stroke but I continued with the first belief for about 24 hours.
I was panicked I texted all the kids and told them what the doctors had said. I didn't know who the doctors had said should be there but I felt that all the family should be there. I later learned that Sara had also contacted all the family. Amazingly, even though she had not talked to most of us for about 6 months because she was saying she wanted a divorce and Nathan was devastated, she invited all of us to stay at her house and to use her extra cars.
Maren, Lexie and Erick around the counter at Sara and Nate's |
Kirsten and BJ in the kitchen |
Just before we left to go to the hospital I said a prayer for Nathan. I was hopeful that we would get there before he died. But the spirit quickly told me he was going to be alright.
BJ is the Perfect Role Model |
Mike took us to the hospital and waited for us as we visited with Sara and then took us to her house. I was worried about how late we were keeping him up but he said that his usual shift was from 4p.m.-2 a.m. so I relaxed after that. We got to the hospital at about Midnight and wandered around with a cleaning lady who thought she knew where we wanted to go for about a half hour. She took us to two different places before we found the right ICU that he was in about 12:30 a.m.. Nathan was sedated so he did not respond that night. It was hard to see him with all the tubes and machines on him and I longed to here him say, "Hello Mama" like he had so many times before but he could not have talked if he could with all the tubes down his throat. Sara spent the night at the hospital. Even though she had told us that they had a bad fight on Friday night to the point that Nathan was taken to the jail by police and when he came home he had a head ache and started throwing up. She said that she had asked a friend to take him to the hospital and then she had fallen asleep with Maggie. She woke up to the hospital calling her and letting her know that Nathan had been admitted. There seemed to be a lot of holes in the story that would later be filled in but for the moment she wanted to be with him.
Maren rolling her eyes because she didn't feel attractive enough to be having a picture taken and Max, Max added a lighter mood to everything but Maggie was not sure she wanted another baby there. |
I was embarrassed that Larry wanted to sleep in Nathan and Sara's bed because Sara had told us her father and his wife were coming. There were several air mattresses set up in the family room and Maggie's bed was by that. I felt like they should have the bedroom downstairs so they would not have to be in the middle of our family. Larry insisted though so we slept for one night. Luckily Frank and Kay did not get there that night. So I was relieved but I felt even better when Larry moved all of our luggage up to Maggie's room so we didn't have to make them go there. I was surprised how good the bed was and I slept well each night until the last night and so did Larry.
Maggie and Sara at the restaurant Wednesday night |
The first night it was just Kirsten, Maren with Max and Larry and I. That morning Jacob texted that he was in a traffic jam in Austin. Before we got ready to go to the hospital he was texting us to know which entrance to the Hospital he was supposed to use. So he got there before we did that day and to our surprise he had brought his oldest daughter Lexie with him. It was fun to have her there as well as Jacob. B.J. had got a flight but would not be in until later that afternoon. Erick had stayed home because he did not want to remember him as he was and he said that he would come down for the funeral.
Erick, BJ and Maren Max is there somewhere |
Jake and Lexie |
Kirsten and June at the restaurant |
Erick in the kitchen |
Sammy playing angry birds with his angry bird hat on. |
Maren talking to Sara's friend Melinda Steadam in the Hospital Waiting Room outside ICU |
Jacob said that he had cried for him when he came in and told him, "what was he doing in this bed, he was supposed to be showing him San Antonio". Later he cried about a lot of things that we would say. I think that was the only emotion that he could show. He would cry when we told him something good and he would cry when we told him something sad. At times he seemed to be crying because of frustration but at least he was alive and crying. It never occurred to me that he would not survive after that even though the doctors continured to assert that he could die any time.
Sara with Kay waiting to go back into see Nathan after they finished working on him in the waiting room. |
I talked to Erick for a while on Monday and told him what the doctor said about we were there to help Nathan. One of the reasons he had stayed home he said was because Heather did not feel good so he said he would talk to Heather. The next thing we know Heather is calling us telling us he will be in on the Tuesday evening flight. It was kind of bittersweet to have all of my biological children under one roof. We had some good times but it was also draining emotionally.
Sara's Father Frank Roberts and Kirsten waiting |
Lexie and Larry waiting |
Sara got good news during all of this. Because Nathan was on active duty military orders she will have a paycheck until he is better and if he does not get better she will have his retirement. His medical bills will all be covered and he will be treated as a wounded soldier. Sara can have us flown down if she needs our help once or twice a month. Which is great for me because we are short on money right now.
Kirsten and Maren spent a lot of time with the kids and planned a few trips to do fun things while we were there. One afternoon we went to the movies with the kids and bought treats for them. I went with them that time. Another night we all went to dinner with Sara's family and her parents. One of the last evenings there they all went to the river walk in San Antonio to show it to the kids and Erick as Erick had never been there. By the time they had done all this the kids were adoring them and having a good time. Maggie grew especially attached to Kirsten and did not what her to leave the last day.
Nathan made little improvements each day. He began to be able to open his eyelids for yes instead of someone opening them for him. They began to not worry so much about his temperature and his skull swelling. On Thursday we had a meeting with the doctor's. They explained that Nathan had locked in syndrome. One of the Dr.s Frey had told me earlier in the week that was the worst case senerio. Essentially it means that he has a functioning mind inside a body that does not function. Sara had been prepared for this by a friend at the hospital that had told her that was what was in his chart but I was upset because he had told Sara that because she was upset after hearing that. I felt like he was wrong then here in the meeting after what the doctor said I was a little shocked because I had been told that was worst case scenario and now they were telling us that is what he had. They talked about options and heard from several different kinds of doctors. They talked about how Sara would have to make a decision on where to take him for rehabilitation. At the time she was against the VA because Nathan had a bad experience there with his employment and she didn't think that would work for him. But as she investigated it turned out to be the best place for him in San Antonio. After the meeting I was a little depressed for a few days. I knew that the spirit had told me that this was for the good of their family but it was a lot to absorb in a short time.
Before we all left we got together as a family and the men all helped in giving Nathan a blessing with Erick as the mouth. He was told that this was for his good and the good of his family. He was told that he would not be healed immediately but he would be healed with "some problems" As time has gone on the spirit has let me know the reasons for the way of healing. It will help their family to heal and learn to love each other again.
Larry in a bow tie for Nathan |
Jacob started leaving on Thursday and we gradually all went home by Sunday. They started to get the tubes out of his mouth on Sunday when they did a tracheotomy in the morning and put a feeding tube in the next afternoon. He was breathing on his own but they wanted him to have oxygen still so he had a CPAP type of assisting device. I did not want to go. Sara needed so much help but I realized that I needed to let the Relief Society help while they could and that I needed to get home and do what I do at home.
Sunday was an exciting day. People had got on Facebook and encouraged everyone to fast for Nathan and to wear bow ties in honor of Nathan because he always wore bow ties. It was so fun to see all the people come into Nathan's ward with bow ties on. Larry wore one of Nathan's bow ties and I wore a ring and a pair of earrings that were like bows. Many people posted pictures of them wearing bowties on Facebook for Sara to see. When we told Nathan he cried.
Kirsten and I had a good talk together on the way home which helped me to understand that Sara was not home when Nathan came home with a headache from jail. He contacted her by phone. She was afraid to come home after the fight so she called around to members of the ward to see if someone would take him to the hospital. I wonder why he did not just call a taxi like he did coming home from jail. She thought he was just messing with her to try to get her home. She said he had the headache in jail so she wondered if it started Friday night when he got so upset because he had never been so mad. When he got home he started throwing up but she thought he had just a stomach flu. She eventually found someone to take him and he went and stayed there until Nathan had a seizure and they admitted him to the hospital. The ward member tried to get hold of Sara but her phone was on silent so she did not hear it. The next morning she heard the phone at 5:00 am. It was the hospital calling asking her if she knew that her husband had been admitted. She felt terribly guilty then. Shortly after that was when she called me. It doesn't matter now and we can't go back but I wonder if he would have been able to go to the hospital sooner if he would have been spared some of the problems with the new drug they have. Although I feel like this is a blessing given from Heaven in answer to our prayers for Nathan and Sara and their family.
Kirsten rented the "Diving Bell and the Butterfly" a movie about a man who wrote a book about how he felt with locked in syndrome. She was able to watch it but I continued to have anxiety about how Nathan was feeling. I could only watch about 3 minutes of it and it gave me anxiety. I had anxiety all week after we got back. The only way I could get comfort is to pray that Nathan would be comforted and that he would not have anxiety like I did. Eventually I had to ask Larry to give me a blessing. I have felt better since then. But I knew that I had to go back soon so that I could see how Nathan was doing. Sara was posting some negative things that were happening in the hospital
and I needed to see him again to see how he was doing.
Monday the 8th of May Sara had me flown down for 4 days. When I saw him I knew that he was better even though he had had pneumonia all week and was still recovering from that. His eyes looked better and he seemed to be learning how to communicate. On Tuesday they transferred him to the VA Polytrauma center about a half-hour northwest of the hospital.
John and Judy came down to see me and Nathan again. It was scary the first time I had to drive to the VA but Sara and John and Judy both gave me instructions and I eventually found the place. As I watched the different types of therapists work on him the next day I felt joy realizing that they could help him bring back what was lost.
As of tonight he can shake his head for no and yes. He can sit up in a wheelchair. He is being evaluated to see what he can do. They are helping him move his muscles hoping to heal the connection that control the things he needs to do like comb his hair and wash his face. They are getting him outside in the wheelchair and he likes that. He has a machine that they are trying to help him learn to use to communicate on the computer with his eyes. He can smile and laugh at jokes. Definitely simple things and he has a long way to go but they give us hope. Everyday I now thank my Heavenly Father for the blessing I have that my body responds to the commands that my brain starts.